Every year on the last day of February is Rare Disease Day®. This holiday does not feature an elf that sits on a shelf or a jolly man in a red suit. Instead, the National Organization of Rare Diseases (NORD) promotes Rare Disease Day® to raise awareness for over 7,000 rare diseases. The NORD mission …
Recently I learned that it takes 131 donations of healthy human plasma to make the amount of medicine I infuse in just one week! Imagine my further surprise when I found out it takes over a year to produce my life-saving medicine! You may have heard that plasma from recovered COVID-19 patients is an effective …
I’m excited to make an announcement! CVIDiva is now on YouTube! Diary of a CVIDiva is my new YouTube channel dedicated to all things CVID! Let’s Go Vlogging! I love writing and working on CVIDiva.com, but some things you just have to watch to understand. Plus, I have aspirations of chatting with other CVID patients, …