I recently shared my first SubQ home infusion with everyone! You saw all the little pieces, parts and equipment needed, right?! It’s a lot! So, I wanted to share the advice my cousin, Mary, gave me – make your own SubQ infusion kit! (She’s so smart!)
Mary is actually my mom’s cousin so I’m 99% sure that makes her my second cousin once removed? (Feel free to correct me if I’m wrong!) Mary is my mom’s age…a young upper 60/70. She was diagnosed with CVID about 15 years ago after experiencing a series of numerous sinus infections that were untreatable with antibiotics.
Mary suggested that I make my own SubQ infusion kit so it’s less of a hassle each week to get set up. The less prep the better for something that def doesn’t rate high on my fun list! So, after taking a look at some pictures she sent me, I got to work! (*For further clarity, video of my SubQ Infusion Kit is at the end of this post.)
Step 1: Gather the Items You Will Need for Your SubQ Infusion Kit
Container to house your SubQ Infusion Kit! I’m using a clear plastic tub with a lid until my own zebra bin arrives! The bin with the cartoon zebra on it would be adorable for a little one!
Plastic slider bags-reusable ones that are a little more heavy duty are more durable
All the SubQ items from your doctor or pharmacy
Pre-medications-per doctor’s orders I take 4 ibuprofen and 1 allergy pill
Infusion log-if you don’t have one use a notebook for now, but you can go here to request one from IG Source. You do have to sign up and provide your email, but they really are a wonderful resource. There is a lot of useful information on their website and a helpful IG Advocate will check in with you periodically to see if you need any help or have questions. The IG Advocate phone calls were and still are a source of connection and comfort for me.
Appropriate Container to Throw Away Your Used Needles
Step 2: Sort the Items for Your SubQ Infusion Kit Into Plastic Slider Bags and Label with Your Permanent Marker
Sorting all your SubQ supplies when you first get them will make things so much easier when it’s infusion time! I pick up 4 weeks of SubQ Infusion at a time so I organize everything right away and place my kit in a safe location away from little ones.
*There is no picture of my pre-meds.
Koru Infusion Pump & “Hands-Free” Bag
Infusion Medication (My Current Prescribed Medication is Pictured Below)
Spikes and Red Caps
Alcohol Swabs, Cotton and Medical Tape
Additional SubQ Infusion Kit Supplies Including Infusion Log, Permanent Marker and Pen
Ta Da! Here is My Complete SubQ Infusion Kit
My Sharps container for used needles isn’t in the picture, but it also fits in my tub.
Here’s video of my SubQ Infusion Kit. I hope this will help make all my fellow Zebra’s infusion just a little bit easier!
If anybody has their own methods of storing their supplies, please email me and share! I’m always looking for great ideas! Also, in case you didn’t download it above, get my SubQ Home Infusion Kit Checklist now!
Stay strong my Zebra friends!
ABOUT THE AUTHOR
Though DIVA as she may be, her path to success was not easy and is always evolving. Go here to read about her journey in “Becoming the CVIDiva.” If you want to send Susan Alynne a quick message, then visit her contact page here.