RESOURCES

Resources

I will continue to add to the following list of CVID Resources as I uncover them and/or am told about them.  Please feel free to email me at susanalynne@cvidiva.com if you would like to suggest a resource to be included!

PLEASE, PLEASE, PLEASE educate yourself, your doctors and others about Primary Immunodeficiencies.

CVID Resources

HANDOUTS

WEBSITES

(I aim to provide websites that are factually backed by long-term medical and scientific research.)

Immune Deficiency Foundation–https://primaryimmune.org/

Genetics Home Reference–Common Variable Immune Deficiency

Jeffrey Modell Foundation–http://info4pi.org/hq

CSL Plasma–https://www.cslplasma.com/

National Organization for Rare Disorders–https://rarediseases.org/organizations/advocacy-awareness-immune-disorders-association/

IG Living-https://www.igliving.com/

BLOGS

(Again, I aim to list blogs that are currently active so please email me if you know of any!)

IG Living Blog–http://www.igliving.com/BlogEngine/

The Mighty-https://themighty.com/

Miss Molly Bell-https://www.missmollybell.com/

ONLINE SUPPORT

IDF Friends *You do need to create an account to join this group-https://idffriends.org/register/

Daily Strength *Has online support groups for a variety of different health issues, but I’m including the link to the CVID support page here-https://www.dailystrength.org/group/common-variable-immunodeficiency

FACEBOOK SUPPORT GROUPS

(Most of these groups you need to ask to join first before posting)

CVID Zebra Support Group-https://www.facebook.com/groups/CVIDZebraSupportGroup/

CVID (Common Variable Immunodeficiency)-https://www.facebook.com/groups/127399757357272/

Common Variable Immune Deficiency Support Group-https://www.facebook.com/groups/612160978843807/

CVID: An Official IDF Facebook Group-https://www.facebook.com/groups/IDFOfficialCVID/