RESOURCES

A GROWING LIST OF CVID RESOURCES

I will continue to add to the following list of CVID RESOURCES as I uncover them and/or am told about them.  Please feel free to email me at susanalynne@cvidiva.com if you would like to suggest a resource to be included!

WEBSITES

(I aim to provide websites that are factually backed by long-term medical and scientific research.)

Immune Deficiency Foundation–https://primaryimmune.org/

Genetics Home Reference–Common Variable Immune Deficiency

Jeffrey Modell Foundation–http://info4pi.org/hq

CSL Plasma–https://www.cslplasma.com/

National Organization for Rare Disorders–https://rarediseases.org/organizations/advocacy-awareness-immune-disorders-association/

IG Living-https://www.igliving.com/

BLOGS

(Again, I aim to list blogs that are currently active so please email me if you know of any!)

IG Living Blog–http://www.igliving.com/BlogEngine/

The Mighty-https://themighty.com/

Miss Molly Bell-https://www.missmollybell.com/

ONLINE SUPPORT

IDF Friends *You do need to create an account to join this group-https://idffriends.org/register/

Daily Strength *Has online support groups for a variety of different health issues, but I’m including the link to the CVID support page here-https://www.dailystrength.org/group/common-variable-immunodeficiency

FACEBOOK SUPPORT GROUPS

(Most of these groups you need to ask to join first before posting)

CVID Zebra Support Group-https://www.facebook.com/groups/CVIDZebraSupportGroup/

CVID (Common Variable Immunodeficiency)-https://www.facebook.com/groups/127399757357272/

Common Variable Immune Deficiency Support Group-https://www.facebook.com/groups/612160978843807/

CVID: An Official IDF Facebook Group-https://www.facebook.com/groups/IDFOfficialCVID/