Living with CVID, but still a DIVA
Living with a Primary Immunodeficiency isn’t always pretty…but knowledge, community, support from loved ones, a little advice & a few tips can help you live your life to the fullest.
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Learn the most important information you need to know about the Primary Immunodeficiency (PI) called Common Variable Immune Deficiency (CVID).
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Hi there! My name is Susan Alynne – the CVIDiva – and my life has completely changed because of a CVID diagnosis!
After an almost 10-year search for the root cause of chronic pain and fatigue, and a handful of autoimmune diagnoses including Fibromyalgia, Interstitial Cystitis, Sjogren’s Syndrome, Rheumatoid Arthritis, and Ankylosing Spondylitis (this one was called a “maybe” by the doc), I finally-FINALLY-found out I have CVID in October 2017. Despite its name, Common Variable Immune Deficiency (CVID) is actually a rare Primary Immunodeficiency Disease (PIDD) of which there are over 300 known today.