Living with CVID, but still a DIVA

Living with a Primary Immunodeficiency isn’t always pretty…but knowledge, community, support from loved ones, a little advice & a few tips can help you live your life to the fullest.

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Learn the most important information you need to know about the Primary Immunodeficiency (PI) called Common Variable Immune Deficiency (CVID).


A growing compilation of websites, blogs, online support groups including Facebook groups.

How You Can Help

Read about how you can help. Do it. Then go feel good about yourself. You deserve it!

My Story

Hi there! My name is Susan Alynne – the CVIDiva – and my life has completely changed because of a CVID diagnosis!

After an almost 10-year search for the root cause of chronic pain and fatigue, and a handful of autoimmune diagnoses including Fibromyalgia, Interstitial Cystitis, Sjogren’s Syndrome, Rheumatoid Arthritis, and Ankylosing Spondylitis (this one was called a “maybe” by the doc), I finally-FINALLY-found out I have CVID in October 2017. Despite its name, Common Variable Immune Deficiency (CVID) is actually a rare Primary Immunodeficiency Disease (PIDD) of which there are over 300 known today.


Subscribe now & download the CVIDiva 101 Guide. My guide provides the basics on CVID & my personal experiences living with CVID before & after my diagnosis.

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