Diary of a CVIDiva

I’m excited to make an announcement! CVIDiva is now on YouTube! Diary of a CVIDiva is my new YouTube channel dedicated to all things CVID!

Let’s Go Vlogging!

I love writing and working on CVIDiva.com, but some things you just have to watch to understand. Plus, I have aspirations of chatting with other CVID patients, caregivers, physicians, scientists, advocates, and other major players in the Primary Immunodeficiency arena.

Why Did it Take Me so Long to Start Diary of a CVIDiva?

It’s super hard to be vulnerable! I admire my Zebra friends who have taken that leap and went live! In fact, you’ve got to check them out!

Mountain Climbers

Mountain Climbers is a wonderfully inspirational channel by fellow Zebra Whitney Ward. I met Whitney last year and was blown away by her! She is a writer by trade and writes for IG Living. You MUST read all about Whitney in this article from IG Living! She does not have CVID, but was instead the first person to be diagnosed with another Primary Immunodeficiency called MAGIS.

Cheryl Pace – CVID Explained; Rare Disease Awareness Video

I also met Cheryl last year and was just simply blown away by her positivity! In fact, if I had to describe her in one word that would be it! Cheryl posts videos on a wide range of topics in which she positively glows! She is a fellow CVID Zebra and here is her easily understandable, information-packed YouTube video on CVID.

CVID Explained; Rare Disease Awareness
Watch this video on YouTube.

Now it is My Turn!

Diary of a CVIDiva YouTube Trailer

Here’s the trailer, and if you have any ideas please comment below or email me!

CVIDiva Trailer
Watch this video on YouTube.

Stay strong my Zebra friends!


Though DIVA as she may be, her path to success was not easy and is always evolving. Go here to read about her journey in “Becoming the CVIDiva.” If you want to send Susan Alynne a quick message, then visit her contact page here.