I will continue to add to the following list of CVID Resources as I uncover them and/or am told about them.  Please feel free to email me at if you would like to suggest a resource to be included!

PLEASE, PLEASE, PLEASE educate yourself, your doctors and others about Primary Immunodeficiencies.

CVID Resources


CVID Resources - 10 Warning SignsCVID Resources - 4 Stages of Testing


(I aim to provide websites that are factually backed by long-term medical and scientific research.)

Immune Deficiency Foundation–

Genetics Home Reference–Common Variable Immune Deficiency

Jeffrey Modell Foundation–

CSL Plasma–

National Organization for Rare Disorders–

IG Living-

Donating Plasma-



(Again, I aim to list blogs that are currently active so please email me if you know of any!)

IG Living Blog–

The Mighty-

Miss Molly Bell-

Online Support

IDF Friends *You do need to create an account to join this group-

Daily Strength *Has online support groups for a variety of different health issues, but I’m including the link to the CVID support page here-

Facebook Support Groups

(Most of these groups you need to ask to join first before posting)

CVID Zebra Support Group-

CVID (Common Variable Immunodeficiency)-

Common Variable Immune Deficiency Support Group-

CVID: An Official IDF Facebook Group-