Susan Alynne

Blogger: Primary Immunodeficiency-CVID Advocate and Patient Designer and Shop Owner-Designably Yours Decor

Diary of a CVIDiva

I’m excited to make an announcement! CVIDiva is now on YouTube! Diary of a CVIDiva is my new YouTube channel dedicated to all things CVID! Let’s Go Vlogging! I love writing and working on, but some things you just have to watch to understand. Plus, I have aspirations of chatting with other CVID patients, …

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SubQ My First Subcutaneous Home Infusion

I’ve been in training! For the past month my IV nurses at Dr. K’s infusion clinic have been teaching me to do my first subcutaneous home infusion (commonly referred to SubQ). I trained at the clinic for four weeks before I did my own SubQ infusion at home yesterday! Today, I’m going to share with …

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9 apps

Since being diagnosed with Common Variable Immunodeficiency Disorder (CVID), I’ve stumbled upon some apps I can’t live without. I use these apps daily – multiple times. Hey, anything to make living with a chronic disorder easier, right? (Can I get a Hallelujah and an Amen!) via GIPHY Cozi Cozi is a family organizer app. My …

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