Susan Alynne

Blogger: www.cvidiva.com Primary Immunodeficiency-CVID Advocate and Patient Designer and Shop Owner-Designably Yours Decor

cvidiva SHOW YOUR STRIPES-rare disease day 2021

Every year on the last day of February is Rare Disease Day®. This holiday does not feature an elf that sits on a shelf or a jolly man in a red suit. Instead, the National Organization of Rare Diseases (NORD) promotes Rare Disease Day® to raise awareness for over 7,000 rare diseases. The NORD mission …

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5 Ways to Create Your CVID Support Team

Living with a chronic illness like CVID is challenging to say the least. Learning how to handle and cope with it is a process — it doesn’t happen right away. However, you will feel more empowered and in control if create your CVID support team. Let’s explore how we can plant the seeds for a …

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Side Effects from SubQ

I have had several readers ask me what my side effects from subcutaneous IgG infusions (SCIG) are since switching from IVIG (intravenous immunoglobulin infusions). I’m happy to report the side effects are few and continue to decrease with each SCIG! My Side Effects From Subcutaneous IgG Infusions – Ouch! Before attempting SCIG at home by …

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